The Ellsworth Family

Family Photos

2010-02-06T15:27:00.005-07:00

I thought I would try to post some more pictures of the family and things we have done recently. Over Thanksgiving we took pictures with our family. Brandon took them with his spiffy camera and his remote control!

The girls.
The girls.

Rebecca and Joe.
Mike and Linds.
Steph and Brandon.
Brittney and Fat Cat.

HELLO! LONG TIME NO SEE!

2010-01-12T22:45:00.004-07:00

THIS IS BRITT SINGING AT 'SHOWCASE AT CHATFIELD. SHE DID A GREAT JOB!

milo doesn't know what to think of Christmas....

We make a mess huh?

I was thinking how long it's been since we posted anything on here. Things have been so busy...life! So I'll just take a few minutes to report on Christmas and such and say hello! Hope all of you out there, family and friends, had a lovely and joyful Christmas. If we saw you or heard from you, then we were blessed! If not, we can't wait until we do see you or hear from you again.

Thanksgiving was very very nice....all of us were here! I was thinking how fun it is these days when we get together, because when we are done eating, we just sit around and laugh and talk and make good fun of each other (usually directed at me, but I deserve it). Steph and Brandon came from Utah and we had a wonderful thankful time!

Christmas then came all too soon. I have to wonder what inspires me to want to work in a retail establishment at such a crazy time of year, but I somehow love it. But we managed to still have lots of fun times. Steph and Brandon were at Brandon's house in Rexburg for Christmas, so it was sad not to have them here, but we did the computer web cam thing to open each other's presents which was really cool. We always take forever to open presents because we hate to see all the fun end. Right as we were getting done with Steph and Brandon, Joe handed me this tiny little gift bag. In it were keys! Yes that's right Rebecca got a new Honda CRV....tango red! What a nice husband! Our van has loads and loads of miles on it and won't last too much longer. And somebody in our family just got her license (that would be BRITT) and she is SOOO excited to get to drive the mommy van...how cute huh?

So that and more made it a very fun Christmas. We have now had seven without Brian. I didn't think I could make it through one. We miss him every single day. There are many things we are grateful for though, and one is that Joe is recovering well and we know his stroke could have been something much worse. He is doing okay! Much slower recovery than any of us ever thought, but he has a good routine for building up his strength, doing good deeds, even taking care of the home front while I run off to work. Talk about role reversal! (Although he always was better at vacuuming and dishes than I was...) I'm posting a couple of pictures but I'll add more later....

Current Pix

2009-08-15T16:53:00.006-06:00

SIGNAL MOUNTAIN FAMILY REUNION August 6-7, 2009

(NOTE, THE ABOVE IS NOT A MEMBER OF OUR FAMILY) I noticed I had already posted pix from Steph's graduation and thought I oughta post something more current. Here are some pix from our family reunion at Signal Mtn. in Grand Teton National Park. We've been going there off and on for something like 35 years. These are pix Brandon our son-in-law took and they are maaaaaaavelously pretty! (Well, the first is a pic of all the Moss siblings...I wouldn't call us ALL pretty...ha)

This is the whole gang ALL TOGETHER! (Well except Brian, and he is with us always as we know).

Mt. Moran and it's signature glacier. I love this mountain...happy memories under it, while it stands tall and majestic above...that glassy lake is what many of us swam across ...about a mile I think (not me..too cold and I'm a wimp). But I rowed in my little blowup raft like a real champ! (I was on lifeguard duty)

The OTHER Tetons...that's the Grand on the left. Can you believe how beautiful it is there?

Even in a sudden storm...wow.

Hello again!

2009-08-14T16:23:00.005-06:00

Can you believe it? Rebecca is finally writing in the blog again! We haven't been writing for awhile...been busy yet not too much has changed with Joe's condition. But I miss it, and wanted to share some of the neat pix and such from this summer plus catch up a bit. First, Joe is continuing to progress through his "stroke journey"...it's hard to know daily if he's improved but when we think back to how he was at Christmas, even during all the winter, he has made amazing progress! He still gets VERY TIRED, easily, and his eye bothers him, yet the eye doc says to be patient, so we are trying! Meanwhile, he is home doing great "househusband" things at home, and I have to say I am enjoying it, and I feel spoiled. He has always liked to do laundry and vacuum, as all of you know, but he has also organized some things, done some yard work, kept up on some cleaning, etc. We sure appreciate everyone's kind words and encouragement and love!

Meanwhile, here are a few pix from our doing this summer:

Steph and I on her graduation day from BYU!

All the fam is proud of Steph!

Lindsey, Mike and Britt after the Bolder Boulder!

Back to Steph's graduation, playing at the Penny Arcade with Sis Angie and Fam in Provo!

Girls' Trip to Vegas in June!

That's all for now...I'll add more later! Love to all!!!

Joe Update and Steph's Graduation

2009-05-03T19:48:00.014-06:00

STEPHANIE ELLSWORTH MARCUM GRADUATED FROM BYU APRIL 24, 2009!!!

Well it's about time I wrote! Sorry for the delay...we've been up to our eyeballs, well at least I have! Joe is doing somewhat better, but the noticeable changes have slowed down. His eye still bothers him a lot and I don't think his peripheral vision is improving. He constantly blinks which bothers him but he can't seem to stop it. He can read or look at the computer for about an hour and then he's wiped out. He still gets very tired, and one thing we are noticing that is a big cause of concern is that he "blanks out" once in awhile...forgetting conversations or names or places that he has always known...they are just gone. Of course I have had this malady for a long time now, but I know mine is for lack of concentration not a stroke. ha. They say this is a very normal thing for stroke victims but it is still very disconcerting. He is now officially not employed by JM, but not at all ready to go back to work, so we are waiting to find out about long term disability. One very nice bright spot, though, is that he has been feeling better during the day and he is really doing some great "honey do" things....got all the weeds out of the front planters on Thursday! He can't do anything strenuous, but he sure does what he can! I like it! BUT, ON TO THE NEXT BIG NEWS: LOOK HOW HAPPY HE LOOKS WITH HIS DAUGHTER STEPH AT GRADUATION!!!!!

Except there were some tired moments.....

That's her name.....!!!

The proud hubby..

Steph's buddy Morgan at the Cougar

The Moss proud grandparents!
The Ellsworth proud grandparents!

April and Sue.....BFF's...they drove all the way out from Colorado!

Partying with the nieces and nephews....

(They love Brandon)

Cinderella is an advertising major!
The night before we had Sub Zero Ice Cream...

Temple Square the Day Before...

Celebrating at Mimi's after...

And of course we had to go to the Iceberg...love those shakes and fry sauce!And we played at the nickel arcade with Angie and Fam!
All in all we had a great time in Utah celebrating. We want to thank all the relatives who came for the festivities, and especially Mike and Kathy for providing the beautiful house for us to meet, and we love you one and all! We now have two college graduate daughters!!!! Happy times for the Ellsworths....a few more pix....we love pix.....!!!

Brian's 21st Birthday

2009-04-05T18:10:00.004-06:00

Brian's Cake...Reese's Cup Blizzard

We decided to do something a little different for the milestone that was Brian's 21st birthday, last Friday, April 3. We usually invite anyone who is in town to Fazoli's (one of Brian's favorite eateries) and we have pizza and cake and set off balloons in his honor. This year, as Steph and Brandon live across the mountains in Utah, we decided to meet somewhere in the middle and spend the birthday together. Joe isn't in much shape to travel very far quite yet, but we have had a little spring fever, plus we haven't seen Steph or Brandon in so long, that we thought it was a fine idea to meet not too far away, in Glenwood Springs. It turned out to be pretty fitting because right away when we got there we drove by the baseball diamond where Brian played in a tournament with the Rattlers (or was it Yard Teal?) so it was a nice little trip down memory lane for me. In fact, our plan was to let off the 21 balloons we filled with helium at that field, but it turned out to be pretty snowy, so we let them off at the delightful Hampton Inn & Suites parking lot, after everyone recalling a happy memory of sweet Brian.

I got to blow out the candles...

We almost thought we wouldn't be able to make it Friday because of an impending blizzard; in fact, we turned around to come home when the highway signs said that I-70 was closed past Georgetown. We came home, saw that it had opened up, and decided to go anyway, especially since Mike was driving and we trust his driving skills. What do you know, it wasn't that bad at all...just a bit snowy and slushy and low visibility through Eisenhower, Frisco, Copper, etc.

Steph and Brandon had quite a bit farther to drive, but clear roads all the way, so we met about the same time and had a super fun time going to dinner, playing games *(yahtzee is pretty fun we found out), and sitting in the warm mineral pool most all day Saturday. We watched the final four on tv, had ice cream cake, watched a little of conference on our computer, ate free breakfasts, and in general talked and laughed lots and lots. It was good to be together! Sorry to all those who usually take time out with us to go to Fazoli's....hopefully we will go back to that next year. It's hard to believe Brian would be 21. It's hard to believe he's been gone 6 years. It's hard to believe we've survived this tragedy for this long. It isn't hard to believe that we have done it because of the love we have for each other as a family, the love all our friends and family have shown to us, and because we know we will be together with him again someday.

Here are some assorted pix of our weekend. Steph has more on her camera (of course) so I'll tell her to add some if she can. Thanks all who read this! Joe's progress continues to be slow but sure. I am still very worried about his eye and his vision. Also I worry that he is constantly tired, and especially tired after he tries to do very much. He has his doctor appointment this week so we'll let you know the results of his MRI and all that he says. We remind ourselves that it has only been four and a half months. But the future is so uncertain that it is hard not to worry. I guess we'll just pray....

Going in to the hot springs.The girls freezing with their tiny towels.The "therapy" pool at a comfortable 104 degrees!Hanging out at the hot springs!Mike and BritAt dinner with the whole familyHanging out in the hotel hot tub!Innocent little Joe and the water!

Getting ready to set off the balloons

Happy 21st Birthday Brian...you're always in our hearts...

March Madness

2009-03-17T16:39:00.002-06:00

It's St. Patrick's Day, so I'm writing in GREEN! No green beer for us though....

(Thanks so much to those who came and sent their sweet and kind wishes in so many thoughtful ways on Feb. 28....don't know what we would have done without all of you these six long years...and we have many more to go...)

I thought I ought to give an update about Joe since I didn't do that on the Feb. 28 blog entry. You could see how much better he looks though! He and his little $20 Walgreens cane just go everywhere! By the way, thanks to all who read this blog. Joe tells me that people tell him they check it often and that makes him feel great, and also I hear from many of you also, and we feel so loved!

Here's the latest. I wish I could say it was ALL better. It seems to me that Joe is at a standstill, but maybe it's just because I see him every day. He gets around very well with his cane, but he still loses his balance and it scares me when he tries to walk around without it. His eye is what worries me the most. It is CONSTANTLY blinking, as he is unconsciously trying to focus it. It is disconcerting to watch him, but probably REALLY annoying for him! And consequently, he still cannot do much with reading or working on the computer, as straining to keep in focus causes a big headache after only about an hour. Plus, as the day goes on and he gets tired, his eye AND his body just wear out, and he still goes to bed very early. (Those that know me well know how much I like to have to leave my bedroom early every night...but I shouldn't complain :) ....)

If I had to put a number I'd say Joe is at about 60 to 80 percent of where he was, depending on the time of day. But now is the time he needs to find a new job, and he is still in no shape to interview, let alone chase down contacts, knock on doors, whatever. So I guess you could say we are in limbo. The doc said to give the eye six months, but I haven't seen it change at all in the last two, so it worries me.

There are good things though! His blood levels have been great for the last two rounds of blood tests, so they have the coumadin (wayfarin) dosage figured out, AND he has very little headaches anymore, and nothing at all like he used to have. Just gets headaches when he does too much....hence the job problem. I have to admit I am getting worried and he is getting more worried about our financial situation, but I have to remind myself, WHO ISN'T??? There just aren't that many jobs out there! Sad times, but we are very very grateful for what we have.

Gotta run...Jamon's coming to say hi!!!

Love to all!

Six Year Anniversary

2009-03-03T22:45:00.008-07:00

Below are some photos of the sixth year remembrance of Brian, Michael and Caitlyn....

February 28, 2009

Lindsey working on the luminary bags....

Me with some of "the boys"

Joe with some of "the girls"

Joe thanks everyone for coming

Michelle and her boyfriend and their baby "Michael"

CJ holding him...

It was a beautiful night, and many loved ones came to help us remember and to give and get hugs. We know many more were there with us in thought. We love you all and thank you for remembering our sweet kids....

FEBRUARY ..... NUFF SAID.

2009-02-18T19:52:00.002-07:00

Just a quick update on Joe and to say hello. I love that so many people still read this! It means so much and I can't tell you HOW MUCH. Couldn't even begin.

Joe's MRI/MRA has to be redone. They didn't go down far enough to get all the cerebellum. Hm. He goes in next week again, and then we'll see if there has been any change. Joe is steadily doing better. He walks around the house ok without his cane. But he looks kinda funny, kind of like a toddler, a nice wide stance so he won't lose his balance. He had the last of his physical therapy appointments last week, and Meagan (his therapist) was so sweet and she would be proud of him to see him continuing his exercises every day. He even went to the "therapy pool" at the Ridge (thanks for the suggestion Dawn) yesterday. He did doggy paddles and "pool jogging" for 45 minutes while Britt swam laps....a daddy/daughter date!

The 28th is here in no time. Thanks to so many for your kind words and prayers and thoughts. We can't believe it has been six years. I didn't think I would survive one. It has been easier because of your love and comfort and prayers. And because we know we will see him again. And because of His loving comfort. This is a tough life and we have seen many of our loved ones also have to deal with sadness. Wish we could take it away. We WILL be at the "crash site" with the luminaries on the night of the 28th if you would like to join us. No pressure. I'll talk to the Heykoops and McLeods, but I'm thinking around 5:00 p.m. Or just drive by and see the beautiful remembrance.

AMAAAAZING

2009-02-11T22:02:00.002-07:00

I thought I ought to update the blog and say hello. Today was Parent Teacher Conferences at Chatfield and it was great to see so many people that we love. We love the teachers, the administration, and all the friends we get to talk to while we wait in line to get our turn. Joe was excited to go with me because he loves to hear all the great comments we get about our sweet Brittney and he loves to see all the people in our neighborhood that we have come to love so much over the years. So many commented on how well he looked and how much easier he seems to be getting around with his cane. He is getting quite fast now. He still gets dizzy but he has the whole cane thing mastered I think. He has a constant "wink" it seems as he blinks so much to keep his weak eye focused. I still worry so much that his eye won't go back to normal, but the doc says to be patient. When I think of where he was just a few weeks ago, I guess I have to be very thankful about his progress. Getting back to 100% will take a long time, but at least he is making so many noticeable improvements. He goes for his MRI on Friday so we'll see how that goes...

Meanwhile, we have been keeping pretty busy -- I have been busy at work, plus we've had a few social events to keep Joe busy. The Chatfield basketball boys came for their annual sloppy joe's last week. We just love the boys and coaches and parents. High class group of people ...they have all been so supportive to us and we can't thank them enough, ever.

The seminary kids came for breakfast today, as the Larsens left to take Kenneth to the MTC today (we will miss you Kenneth but we know you'll be an amaaazing missionary). Joe made a zillions waffles while I cooked up four dozen scrambled eggs, and 3 pounds of bacon and sausage. I dunno how Eileen does it every week...whoosh! But I'll tell ya, it sure was a fun way to spend the 6:00 to 7:45 hours of the morning! These are great kids!

So, that's it...it has been an amaaaaaazing journey as we watch Joe slowly but surely make improvements, as we think of all the people who have been so good to us and shown us so much love, and as we thank God that we have so much to be thankful for still. Here comes February 28 around the corner. February holds all those "last" memories and it is always difficult to get through, but we will with the help of so many. Don't forget there will be luminaries on that night...as always.....to remember our sweet loved ones. Ya'll are invited of course...six years....and they are always missed and always remembered....every single day!

WAHOO!

2009-02-01T21:08:00.003-07:00

I haven't written for awhile, and thought I'd catch up. It has been quite an eventful week or so. My parents came out on Monday the 26th and we've had a whirlwind of a time. Mom and Dad wanted to go to San Diego, and as we sometimes like to meet them down there in our favorite beach city, they invited us. But Joe is in no condition for an airplane ride (much less the ride to the airport, ha) and so they decided to come here instead. True to form, my mom decided she would help out around the house and with Joe while they were here, so she immediately set out to clean our fridge, and even got dad in on it. There were bottles of stuff all over the kitchen counters, things I should have gone through a long long time ago (embarrassing to tell of my lack of throw away ability I know), but now when I open my fridge it is like a brand new attitude on life, it is so clean and shiny and lacking in moldy leftovers! We went to stay at the Embassy Suites in Englewood the first night they got here, using some of Joe's Hilton points, to give Joe something fun to do (he looooovvvves the breakfasts there), and we had a great time going out to eat, sitting in the hot tub, and watching a movie on the pay per view.

Joe has steadily gotten faster with his cane this week, and it is very encouraging. His amitryptaline seems to be starting to work, although he still gets EXTREMELY fatigued and some headaches do crop up unexpectedly. The double vision is still a big concern as it seems to be the same as ever. He seems to be always a little bit "dizzy" but he is trying valiantly to get used to it. And his attitude has greatly improved and we are proud of him!!!

CANE YOU SAY CANE?!??!!!

2009-01-22T22:30:00.002-07:00

Yes that's right...Joe is walking with a cane now! As of Monday, I got him a lovely little $20 chrome cane from Walgreens. After practicing all weekend with the physical therapist's cane, getting the turns down (that's where he gets dizzy), we even ventured to the mall on Tuesday morning and did the "before opening mall walk" as many do, old and young, walkers and strollers, lots of morning walkers. Joe walked the entire mall, first and second floors!!! He is much slower than with his walker, but he looks pretty distinguished! There was a 90 year old guy that passed him up with his walker, but Joe wasn't discouraged, no not at all!

THEN, he even walked around Target for a little to pick out some groceries we needed...what a morning for him. He was pooped, but he felt really good about his accomplishments.

Here's some really good news, too....since Sunday morning he hasn't had one single oxycontin! He's off of the looney stuff! I'm giving him tylenol in the morning and his amitryptiline at night, and he reported on Tuesday that his head is actually hurting less and less. This new stuff must be working just like Dr. Arroyo said...what a concept!!! I'll tell you one thing, Joe is a totally different person without the looney pill! AND, one more good thing, his blood level was perfect so we even have the coumidin dosage right now. Soooo much good to report.

One bad thing...he's still have a terrible time with the double vision. He's tried to read and watch tv and do some emails on the computer, but it just starts his headache in a matter of minutes because he's trying to focus and just can't. It's got to be such a frustrating thing to deal with!! The opthamologist said to give it six months...and then "prisms" or even surgery. I hope he will get over this part....

But he's doing what he can...walked around the culdesac yesterday with Lindsey and neighbors came out and said hi. THEN, today he walked all the way to his favorite hairdresser to get his haircut (by Einstein's). I said I'd love to take him but he wanted to enjoy the wonderful 70 degree sunshine. See what I mean about getting the old Joe back? OH, AND THE NEATEST THING....the vacuum turns out to be kind of like the cane, and now that he has the balancing figured out, he can vacuum all he wants! HELLO.....CARPET LINES ARE BACK AT THE ELLSWORTHS!!! YAY!

Neurologist Visit Friday the 16th

2009-01-17T23:10:00.002-07:00

Well, Joe and I trooped on down to downtown Denver to see Dr. Quigley, the neurologist, at 9 a.m. yesterday. Joe got a little dizzy on the ride, but I got very happy when we could use his handicapped pass to park right in front of the building! Wow, that SO beats driving up the parking garage, taking the elevator down down, and then walking for miles to get in the building!

Okay, for the visit. Dr. Quigley was quite fun, and teased Joe that he could start to try to do more even if it hurts. She couldn't find the cat scan on the records in Joe's file, so we told her the blog address and she looked it up there! Ha! She was impressed that I could almost spell all the meds right. She checked all the pertinent neurological functions and declared that Joe was doing pretty well, considering! First, if the dissection of the vein had been any higher, he might have died! Absolutely are we grateful that didn't happen! Then, she said if Joe compares himself to how he was on November 21, it seems like he hasn't made any progress. But if he compares how he was on November 22 at 10:30 p.m., he's made AMAZING progress. Nice optimistic way to look at things, don't you agree? We are to make an appointment for a few weeks from now for an MRI and an MRA to check on his brain and how it's healing.

Meanwhile, she gave Joe the lecture that he needs to try to do MORE, so that he can heal faster. I liked this advice because I miss my "movie buddy" and have been begging him to try to go to a movie for weeks, to no avail. A movie might be a little much yet, but at least I can go "walk him" through the mall or something, right? His physical therapist also came on Friday, and said Joe ought to start using a cane around the house and get a feel for balancing with that, and then work into going out with it.

ALSO, Friday Joe DID declare that his headache seemed to be a little better! Maybe this amitryptaline is doing the trick! Of course, later in the day he was in pain, and all day today, but we aren't giving up hope!

Ok, long winded, but that's the gist of the news for today. Thanks again everyone for your help and sweet comments....can't EVEN begin to tell you what it means!

love,
rebecca

Another day in the life...

2009-01-14T22:01:00.002-07:00

Hello! I've got to say, it is so neat for me to get on here and see who has checked in or written something. It is really touching, and keeps me going. And I run into people each and every day that say they have been "checking the blog"...means a lot to both Joe and I.

Not too much to report...Joe continues to work with the physical therapist and occupational therapist, and is trying to walk around the house a lot with his walker. I caught him trying to vacuum a couple of days ago...big no no. He just misses that vaccum! He claims it is so heavy it holds him up. I had to scold him.

Latest: Dr. Arroyo upped his dosage of amitrypaline (NOT the right spelling but I'm too tired to get up and go look at the bottle) which he takes at night and which wipes him out. It takes about a month to kick in, I guess, and it's been about three weeks. He reduced his oxycontin (sp again?) to only the morning dose. His head still hurts, but we are hopeful that this medicine is going to do the trick. And they also continue to increase his wayfarin (blood thinner) because his levels are "dangerously low"...I really don't like it when they say that. I still worry that he doesn't want to go anywhere or do anything much, because of the constant pain. He seems to be getting a little less dizzy, and a little more of his appetite has come back. Did I ever say that he lost about 20 pounds? That's a lot for him...skinny thing he already was. I think he's gained about five back, despite my cooking, and thanks to those goodies/meals that still magically show up sometimes (thanks). He felt like eating something sweet today (I've been eating sweets for two)! He also started talking about what he's going to do in the future, something he hasn't even wanted or felt like looking into at all.

Also, he's listening to lots of books on tape (thanks to those who lent us some...you are lifesavers) ... which is the only thing he can really do. He can't read because of the double vision which is still there, or watch tv. But he gets through about a book a day...wow. He goes to the neurologist on Friday, so I'll report what happens there....

Meanwhile, thanks so much, again....and again....we are feeling that love and those prayers. I went with Brittney to the Chatfield/Columbine basketball game tonight...it was really great to see these guys that we have come to know and love play so well. And to see so many of our great friends that asked about him. Hopefully he can make it to one of the games soon for an hour or so at least....

Update...Opthamologist Visit

2009-01-08T15:56:00.002-07:00

Hello everyone! Today Joe went on his longest car ride yet up to the Lakewood Kaiser Office to see an opthamologist about his double vision. He spent a lot of time with Joe which was nice. He determined (and I will get this description wrong no doubt) that he has weak "oblique" muscles in that right eye, the side of the stroke, which is something that usually always happens. He said that it takes a long time to fully get better and gave him some tips on how to strengthen the eye. He showed me how Joe's eye actually won't go as far down, up, to the side, as his left eye, and you can even see it kind of "twitching" as it tries to go in tandem with the other eye...hence the double vision! Makes sense! (Marcie if you are reading this don't laugh too hard at my uneducated descriptions). SO, yet another thing that is going to take a long time to heal. He DOES have less, or no, double vision when he looks straight ahead, which is better than he was even a couple of weeks ago. YAY!

I tried to figure out how to take off the Christmas template and music from this blog and add something more Januaryish, but I need Steph for that. It reminds me of my house, where Christmas is still up all around the house (ok, I did start on it, but Linds and Mike are coming on Saturday to help finish it up...another yay!) Meanwhile, Joe continues to slowly improve. I'm worried about his wayfarin levels. They have had to up the levels three weeks in a row now. That reminds me, I need to go play nurse and give him his extra dose right now!

Love to all! Thanks for the continued thoughts, prayers, phone calls, visits!!! love it!
Rebecca

Hello and Happy New Year!

2009-01-05T19:25:00.002-07:00

I'm finally taking a minute to write and catch up. It seems to be just as busy after Christmas as it was before. Joe is slowly slowly doing a little better each day. The doctor said that improvement would kind of taper off and that seems to be the case. Yet when we were at church last week, I noticed how much better he was than the week before (he goes for just one hour and then goes home to rest). And the week before that he went for the first time and barely barely made it through. So it WAS uplifting to see that he actually had improved compared to the weeks before. The usual day for him is to get up and have breakfast, take a shower, rest, work with the physical therapist, rest, work with the occupational therapist, rest, have some lunch, rest, listen to a little of his books on tape (while he rests), eat dinner, rest, go to bed. He absolutely hates to ride in the car as his headaches are still pretty severe and any bump in the road is excruciating. We did make a big excursion to the DMV to get the handicap sticker, but have yet to use it (wait we did at church yesterday!!). Hopefully that will start to improve so we can get him out of the house some. He is still trying this new medicine at night, and the doc raised the dosage, but results won't be obvious for about a month he said. Patience is the key I guess.

Another worry is that his double vision has not improved. The doc said that may not be connected to the actualy dissection of the artery and may be something else entirely associated with the stroke. That has us worried! We have an appointment with the opthamologist on Thursday....we'll see what that entails.

Meanwhile, I wonder just how much of all this will stay with him and whether he will ever be the way he was. I shouldn't worry about that but I do. But thanks to prayers and food and love and kindness we are getting through it just fine!

Love to you all, a million million thanks!
Rebecca

Hey from Rebecca!

2008-12-28T21:57:00.005-07:00

Just want everyone to know how much we love all of you! It was so nice to get so many wonderful plates of goodies and well wishes! Even though Christmas was a bit different this year (I really missed that help from Santa this year...oh boy!!) and it was sad to see Joe get so tired just from all the regular commotion of Christmas morning, it was still so full of joy....because of the true meaning of Christmas. I kept reminding my Primary kids (that's the children's group from 2 to 12 that I help be in charge of) that when we "give" like Jesus gave, then we find the true joy and peace and happiness that He wants us to find. Well, my girls were so tender and sweet in their gifts this year...from the heart. Steph looked and looked on the internet to buy a bottle of Brian's favorite cologne (Him from Gap that is not made any longer)...wow.....and even found an old bottle of Brandon's before which gave her the idea. Lindsey got the idea to get together all of our video tapes from all of our previous camcorders and get them put on cd's, labeled, indexed, everything. Sweet friends in the ward, the Knotts, gave them a great price for it, and so far there are about 22 copied!! Absolutely priceless!! I can't wait to watch them all! Then, Steph had Brandon use his talents in two ways. First he digitally created absolutely beautiful pictures of the temples where we were all married, complete with our names and dates. REALLY beautiful...I'll get a picture of ours on here for all to see. Then, you saw below the portraits he did of the girls...to match our one of Brian. These are priceless gifts of the heart from our girls (and their husbands) who have become the most caring souls on earth. They miss their brother, too, and know it is a hard time at Christmas, regardless of strokes....and even with presents and food and music and decorations.

The ward choir came to carol to Joe last Sunday, and soooooo many sweet people we love filled our house. It made Joe so happy, and really lifted his spirits. It made us cry of course. Kenda Falkner came and sang to Joe with her beautiful voice. Luke Jones came to sing Joe his own special performance...O Holy Night and Silent Night of course. DO WE FEEL LOVED OR WHAT???

Steph and Brandon were here all week, and Steph was the cutest little homemaker, cooking things for her dad that she knew he liked, cleaning, vacuuming, doing dishes, laundry, everything. I didn't realize how tired and overwhelmed I was until she started doing it all (Lindsey and Britt helped MUCH of course too), and it was such a relief. Like Steph said, seems like Joe is in kind of a standstill, yet there are little improvements I guess I miss. If we could just get the pain and dizziness and weakness to get better.....

Okay, it is getting late and I have to go to work early, but just wanted to wish everyone a wonderful New Year, and thank you sooo much for making our Christmas special in so many ways. We are grateful ...more than these words of mine can say.

Much love,

Rebecca

Christmas

2008-12-27T22:53:00.008-07:00

We are in denial that Christmas is over... so we apologize, but you might just have to deal with the Christmas background and Christmas music for a little bit longer!

Christmas was just wonderful for us. It was our first Christmas with 2 married couples here, and we had the entire family at home! Our Christmas wish was granted when Dad came home from the rehab center, so we couldn't have asked for more! We opened presents our traditional way (one person opening one present at a time) and made record time! We finished around 1:00 pm. We were also blessed to have Mikes Mom (Lindsey's husband) in town to celebrate Christmas with us.

Dad is in that "stand still" stage where he isn't getting any worse but he isn't really getting any better. He had 3 visits this past week from his physical therapist that just completely wiped him out each day. But he is trying to move around to keep everything flowing through his body and to keep his muscles loose. He tends to feel stiff from lying in bed all day. He watched a movie with us last night and he watched the whole thing. He kept closing one eye, switching off, so he could focus on the screen.. and it worked. :)

Now for some pictures!
.....
Our gifts are overflowing!

We are all in our PJ's that we opened on Christmas Eve!
This was a gift from my Mom and Brandon to my Dad. A picture of all 3 of the girls to go along with the one he drew of Brian! (It is the drawing just to the right of this one ). ----->
Brandon and I completely covered by our presents!
Dad and Brit in their spots on the couch!

So Brandon and I are driving back to Utah tomorrow to get back to work, but I wanted to say thank you for all of those that brought the amazing treats, goodies, gifts, and food for us. It was so nice to be taken care of and so nice to know so many care.

With Love,
Steph

Weekend with the Family!

2008-12-21T19:54:00.007-07:00

Hello everyone.. it is Steph here. I am back in town! We finished up our last finals Friday morning and drove straight over arriving around 8 pm. Therefore, I was asked to update the blog for this weekend to let everyone know how my Dad is doing. We were assigned to many chores and errands around the house and around the town. We are trying to take over for my Mom. Between her work, primary obligations, cleaning the house, taking care of my Dad, and Christmas shopping.. she has kind of lost track! So Brandon, Linds and I are at her rescue!

Dad has set himself some goals and has been doing a great job achieving them. He has also had some cravings lately. He usually isn't hungry or feeling well enough to eat, so whenever he says he wants something, we jump on it! Yesterday he had a meatball sub from Subway for lunch, and Little Caesar's Pizza and crazybread for dinner!

So Saturday night was the 4 week mark. My Dad went into the hospital 4 weeks ago last night. We are very blessed to think of how much progress he has made in such a short time frame. He is still in tons of pain but we know the prayers are working. So thank you.

Dad is still taking TONS of medication. He has to take about 8 pills 3 times a day! He went to his regular doctor on Saturday and was given a new medicine to add to the list. It is supposed to help with his pain as well as help him sleep. He finally slept Saturday for the majority of the night. This is the first time! The medicine makes him really "loopy" as he describes it, but we have high hopes for it.

I took my Dad to the bank on Saturday and it really wiped him out! He has also been really helpful with cleaning the house and has even vacuumed and cleaned the carpet. He can't live without those perfect lines! This morning Dad accomplished a goal. He went to Sacrament meeting! He had a hard time looking up at the podium and standing up, but he really wanted to see the Christmas program.

The church choir went caroling tonight and decided to make our home their first visit. My Dad was so excited about this! We made hot chocolate and cookies for everyone (sorry if it was too hot!) and enjoyed their beautiful singing. They sang "I'll Be Home For Christmas," specially for Dad. And of course it brought tears to his eyes. This was one of his biggest goals to be home for Christmas. And he is so happy to be home.

I believe he was so sad and down while he was in the nursing home... and I can already see a huge difference in his spirit. Since I was not here the past 2 weeks, I have only been able to talk to him on the phone. And he has sounded so sad. But I can actually see a light in his eyes now!

We are really busy trying to get together our Christmas cards but it is taking us a little while! So just know they are coming :)

Here is Dad getting into the car to come home!

Dad walking in to the house with the therapist.

Dad sitting on his bed. This is his regular spot during the day. And he is sporting his Chatfield shirt!

Everyone at Sunday lunch. Some of the Persson's got to join us!

The church choir singing to Dad.

He was so happy!

JOE IS HOME!!!!!

2008-12-16T22:17:00.002-07:00

What a monumental day! I got to Cherrelyn about 1:00 p.m., the appointed time, but Joe had been packed and ready to go since about 7:00 a.m. I don't know how he did it. I think he had the nurses wrapped around his little finger getting all his clothes and personal items put into bags. When I walked in they were sitting on the chair and he was ready to go!!! The nurse gave me a quick rundown of the meds and I got instructions about home health care, and after about two loads to the car, we were ready to go! Joe was walking plenty fast with his walker...faster than I'd ever seen or expected to see...in a hurry to get home! We got all situated in the car and we just had to sit there in a moment of silence to celebrate.

The ride home made him nice and sick, of course. He sat on the couch with his eyes closed trying to stop "swimming" but that was okay because I had to get all the stuff from the car. Then the phone started ringing. First, it was Kaiser's "anti-coag" unit giving me a full rundown of the wayfarin, blood thinner. Then, Kaiser's regular pharmacy took up another hour or two, going down the looooong list of other meds, having to call me back because things weren't quite clear, etc. I had to write it all down twice just to get it straight...I think I'll have to have Lindsey make me a chart! I am going to have to be a good nurse, I can see. I had to sign my life away to get the oxycondin at the pharmacy. Good thing I won't be out pedaling it on the streets.....

It IS daunting to think of all these things he has to take and do to get better. A lab tech comes to the house each day to test his blood, and then they call me before his evening dose to tell me if I need to change the blood thinner or not. Whew. The home health care is going to come to the house because of the car-dizziness-nausea problem, so I have to set that up. Also, lots of doctor appointments. I asked the Kaiser pharmacy rep, just in passing, if there would ever be a time when Joe could go back to taking regular old ibuprofin for his headache, and I got a 20 minute lecture about the dangers of that! Ok...got it!

Well, I am pooped. Speaking of poop, we're doing better on that too. We will keep a careful watch over that situation for sure.

love to you all...thanks one and all for taking such good care of us. Thanks for reading this. We are so touched that so many are taking time out of their busy day to check on us.

love,
rebecca
p.s. picture of joe tomorrow coming into the house! picture of joe tomorrow sitting on his own bed!

KEEP YOUR FINGERS CROSSED

2008-12-14T17:17:00.009-07:00

My mom asked ME to post the blog for today so I apologize now if my grammar isn't perfect. WOW-- it has been a HARD couple of days. We felt like we were making so much progress and that the pain was finally under our control.... we should have known. Now he's having a lot of pain in his stomach, and Dad says it is an 8 out of 10 on the pain scale!!!! That's 3 points more than the headache was ever rated!! How devastating for my dad and for us. It was so hard watching him come home in so much pain. I am not sure if he was able to even see how beautiful we tried to make the house for his "home visit". Unfortunately it has been another "bump" in our road to recovery but as we all know we need to still keep fighting and have faith that this will get better.

However, from another perspective, things are starting to look better. My dad's headache is a little better today than it has been for the last two days. He wants to come home so badly and I am positive we can treat this pain at home. So, tomorrow we will start planning for his discharge! Hopefully this process will be short and painless, and he can be comfortable at home to continue his recovery. We are praying that he will be able to come home on Monday or Tuesday. A lot of details still need to be worked out but at least we are in the process.

Today my dad had the Larson Family visit!!! They are such sweet and kind people and wonderful friends to each and every member of our family.

My mom took this picture with her phone so it's a little blurry!!! Again, we can not begin to thank everyone for the prayers, thoughts, cards and visits. My dad's counters are filled with cute cards and well wishes, so thank you, thank you, thank you.

Dad put his pirate patch back on today to help his right eye focus a little better. Here is another picture:

That's really all for today, but hopefully he'll be home soon, and we might even be able to write a little note from him once he gets settled in. Thank you again for everything.

-Linds

Well so much for that...

2008-12-14T00:44:00.002-07:00

Just a quick entry tonight because it's so late! I didn't want to write anything in here yesterday because it was all so discouraging. Joe was so excited for the "home visit" but when I got there to get him he had a horrible stomach ache. He didn't want to put it off because that meant also putting off the day he could come home, but by the time we arrived home with the therapist, Joe wasn't just nauseated from the ride but also writhing in pain in his stomach. They had given him different medicine dosage; his roommate had gotten sick and he wondered if he was getting it; he wondered if he'd eaten something that made him sick...all sorts of things were in question. He was so miserable he couldn't even look around the house and see all the Christmas decorations his kids had so lovingly put up and the signs saying "welcome home dad" and "you can do it" that Lindsey had made. Then, when we got back to Cherrelyn, it was worse than ever. He could only moan in pain. They ordered an x-ray of his stomach, which took four hours for them to do because the technicians have to be brought in. Then the results took another four hours. At 10:30 p.m. we learned it was a simple but horrible case of constipation brought on by that dang percocet again (he'll shoot me when he sees I put this in here, but we ALL have dealt with it at one time or another haven't we?). They had given him all sorts of things to help with it, but it had only served to make him "writhe" in pain. It made us all so sad and worried.

Today isn't much better...he's still in MUCH pain. He hasn't eaten a thing since Friday morning (and he's already lost so very much weight); can't hardly move at all. They say he should feel better by tomorrow and we can only hope and pray they are right. There is no going home tomorrow though. Hopefully Monday; Tuesday at the latest. He wants to be home sooooooooo much. We want him to come home soooooooo much. I have a picture to post of him walking into the house with his walker, but I'll save it for later when we are in a less discouraged state.

Meanwhile, though, the bright spot is how many continue to call and send cards and write on here and go visit him, and bring us meals and so many many things to show love. We don't deserve it but we sure do love it. We love all of you who read this .... thank you from the bottom of our hearts.

Ooops.

2008-12-10T23:45:00.002-07:00

Here I thought I was ALL THAT paying all the bills so smoothly, quickly, and well. Today my gap credit card declined. No! Not at my own store! Oh the embarrassment; oh the shame! I wondered what this was all about but, no biggy, I just called them once I got home. After a series of "push no. 1 for this and no. 2 for that," and getting disconnected twice, I found out it was declined because someone did not pay the bill! That would be me! The buck stops here! I so carefully paid each and every bill in my possession! Oh wait, I never did see the gap one, and I'd even asked Joe about it and he thought he'd already paid it. NOT SO. After a big long search through Joe's closet I found the bill tucked into a corner of his shelf, completely out of sight. Joe swears he did not put it there. I swear I didn't either. Whatever happened, now it's taken care of and I have learned that I am NOT "all that"!

Now for Joe. He is definitely doing better. Still tired and headachy, but I think they are controling it a bit better without the percocet. He really wants to come home and I hope he can soon! He'll still have lots and lots of therapy to do but we will be able to do that here I believe. We'll know after the home visit on Friday. I have been absolutely amazed as I watch Joe have to "tell" his brain to do things, and then wait for it to respond. It is a crazy process. I feel like I'm taking Stroke 101. I know Joe is taking the crash course.

Love to you all! Britt and I have a highlight to our day. Angels that drop off most delicious food! Thanks so much! And thanks for the prayers!

Some good news!

2008-12-09T23:14:00.003-07:00

It's late and I should be in bed, but I just have to report some good happenings going on at Cherrelyn Healthcare Center! Joe's doctor, Dr. Wright, called today and has adjusted his medicine to NOT include percocet but more of oxycodon and something else (I forget) in the meantime if he needs it. The percocet was just making him drowsy and doing nothing for his headache. We will see how that goes in the next few days. He has been working as hard as he can on the therapy because he wants to get outa' there! The physical therapist called me today and scheduled a little field trip for Joe in which he gets to come with her to our house and do a "home check" to determine the things he needs to prepare for, and what we need to prepare for, so he can come HOME! YES! I think sometime next week! YAY!!! And Joe must be feeling like his old self because he called me shortly after to make sure I had the house all clean and vacuumed! That's my Joe! We've still got a loooooooonnnnnnnggggggg way to go but I have a feeling his progress will shape up better once he gets home. Maybe he'll get a full night's sleep!

Meanwhile, Brittney and I have had the best food and goodies that we've ever eaten in our whole life! Thank you friends and family! And for the cards and goodies and books on tape and calls and....prayers!!!

A Better Brighter Day

2008-12-07T21:26:00.006-07:00

Okay, I'm nuts to post a picture of the both of us looking so old, but I wanted you to see us with smiles on our faces....yes smiles!!

Well, there's still a blinding headache; there's still tiredness and weakness, but what has changed today is that we have renewed hope and courage, much due to the many prayers and other powerful gifts that have been offered on Joe's behalf. Today Britt and I got to Cherrelyn after we changed from church, but we were beaten there by Doug Hulme and Bob Gilligan. Then the Wilcox's and Jensens were there with the sacrament (Aaron's very first time to bless it and how honored are we that it was for Joe!!) and also Reed and Chris gave a special priesthood blessing to Joe, and then even Britt and I. We ALL needed that powerful boost, and I just cried as I realized that I CAN get strength to be a support to Joe like I should be, and I CAN have the faith that he will get better, and I CAN feel that love from my Heavenly Father that I know is there and never ever leaves. The Antonio's, Laura and Brooke, arrived just in time with Christmas sugar cookies, and it was almost a celebration. Lindsey got there just after they left, and she and I had a chat with the nurse to try to understand what it is about his medicine that is not doing the trick. We have a call in to the doctor, and we ARE getting this figured out!!! Or Else! Joe's brother-in-law Duane has had years of experience with headaches due to the anti-rejection drugs he is required to take after his heart transplant. He and his wife Christina called and I was finally able to connect with them tonight and they gave me great insight. Also Joe's brother Richard had a great comment on here. It's amazing what my cry for help has done!

Lindsey got her dad to wheel himself to dinner, and stayed with him for quite awhile before she had to go to her night shift at the hospital. She is such a caring, loving support...no wonder she is such a great nurse.

So, how do you like that scruffy face? Joe actually called this morning and said, "Bring my razor!" This is a good sign!

Thanks again for all your prayers, your friendship, your goodness!!! SOOOOOOOSOSOSOSOSO many people are loving us...how can we be discouraged with that, huh!!!???

love, Rebecca

Discouragement with a capital "D"

2008-12-06T09:12:00.002-07:00

I don't think I'll write much today since we are all so discouraged and we don't want to sound depressing. Joe is pretty much miserable. The biggest thing is, and maybe someone out there reading this has an answer for us, is that his head hurts so unbelievably bad, He never seems to get much relief. The oxycoton (sp?) and percocet are darn strong painkillers and ought to be doing the job, but they are not. His brow is constantly "knit" in pain. When we ask the doctors, nurses, anyone, why they don't seem to help, they just say "unfortunately this is the nature of this kind of head injury." SO, now when he is trying his best to work on the PT, OT, he gets so worn out after a short period of time that he just sits in his bed for hours after trying to recover. It seems like its a ratio of 20 minutes work to 5 hours pain. Is this the way it's got to be? Isn't there anything that can give him some relief? Physically, I think he could get the therapy going just fine, it's just the pain that wears him out. I'm so confused and I feel so terrible for him. He's the kind of guy that used to take one ibuprofin for the rare headache and be fine for the week. He can't take anything with ibuprofin in it as it will mess with his blood thinners I guess. And I think he worries a bit too that these strong pain killers are messing up his system and can become habit forming.

Well, like I said, discouraging blog entry today. I did take a cute picture or two of Joe in his Valor shirt. Next will be the Chatfield shirt. I'll get those loaded on here asap. MUCH LOVE TO ALL OF YOU for all your support, even taking the time to read my rantings on here. This is my therapy I guess. Lindsey our sweet nurse daughter will get on the doctors today and see what can be done.

A DAY IN THE LIFE IN REHAB

2008-12-04T23:28:00.002-07:00

Well, I think Joe is getting used to things there at lovely Cherrelyn. It is still quite discouraging, though. He is a little disoriented, too, but is trying his best. He did get through both of his therapies today and seemed to push himself his hardest. He's down to eat his meals now, and seems to be getting a little bit of an appetite. He is learning that he has to ask for and keep on top of his pain meds, and getting his shower, etc. He had several visitors, and that seems to cheer him up, and gives him a chance to "recap". It seems like a slow process, but I DO look at just a week ago and I'm amazed at how far he's progressed.

I got all the bills paid and mailed this morning! I can do this! I used to do the bills years ago but I'd always call Joe during the process to complain about how much we were spending, so he took it over for quite a lot of years now. I've noticed the house doesn't look qute as nicely vacuumed lately...actually not at ALL vacuumed this week. Better get on that tomorrow!

Here's a big happening today....Brittney and I went to the DMV to get her learner's permit! This was as big a deal for me as it was for her! It is monumental. But sad in two ways....one, Joe couldn't be there to sign the form to be a driving coach, and two, it was a reality check reminding me about the driver's license Brian never got to have...as we left I saw that they still have the pamphlet there with Brian's picture in it. Whoa...

But it was also a good reality check. Joe will be ok. It will be some work, but how grateful are we that he will be able to heal, that nothing worse happened. We know about something worse...

love to you all,
always,
rebecca

Not so great first day

2008-12-04T07:35:00.002-07:00

Ok, I will try to find humor in this, and help Joe to do so also. First, the therapists and nurses are great at Cherrelyn, but no one has better appreciation for the plight of the older generation than Joe Ellsworth right now! He got a total of one hour of sleep his first night...between the breathing machine of his nice but ailing roommate, some snoring, and other assorted mishaps with body functions, Joe just ended up watching the clock tick by all night, and was thoroughly miserable by morning~~! When I got there, he had just finished doing "OC"...occupational therapy, after being wheeled down to eat his breakfast, and he did okay with the "hand wheel" thing and writing his name several times. Right after getting back from that, and after bumping his head on the bathroom wall (still leaning to his right in all he does), the therapist showed up for his physical therapy ("PT"). He was so tired and grouchy, he said "no way". I got there not long after that and he was trying to sleep. He told me he was worried he alienated his therapist already and could I go find her and tell her he was sorry. He really does want to get better, but is finding that his constant aching head and lack of equilibrium is hampering his style considerably!

SOOOO, the first day started out just grand. But to the rescue came Diane Wilcox, my sweet friend and visiting teacher, with a special white noise machine, and EVEN several CD's of books that Joe can listen to. He has brightened up already. THANK YOU DIANE! I spent a couple of hours there last night going over bills and mail. I have taken for granted that Joe has handled that responsiblity over the last quite-a-few years, and besides things like laundry and loading the dishwasher and vacuuming, I am having a rude awakening. I miss my hubby at home! I will not take him for granted, no siree, after this experience.

I am doing okay, though, thanks to amazing meal fairies showing up at my door every night to feed Brittney and I. Thank You! I really didn't think we needed that, but it is SOSOSOSOSO nice not to have one more thing to worry about.

Today I will try to remember to take a picture of Joe in his new surroundings. He is getting quite scraggly with his semi-beard. He is wearing it as his "badge of courage" or something like that...whatever...he won't let me bring in his electric razor just yet.

love to all,
Rebecca

Whirlwind Day!

2008-12-02T21:33:00.002-07:00

Well, Joe is all settled in at the rehab center! He got to ride in the "ambucab" while I drove behind in the van with all his stuff for his stay. He was really weak and tired once he finally got there, but they welcomed him with open arms there at Cherrelyn, getting him all settled, examining him, even doing a bit of physical therapy already. Lindsey met us over there and got his suitcase unpacked, etc. I think he is very glad to leave the hospital gowns behind (pun intended!) We have to grab the humor wherever we can get it, and speaking of humor, I had an interesting time getting the van loaded with Joe's belongings as we left. I had about five bags of things to take from the room, so they gave me a cart to take it to the car with. I don't know why I didn't think to leave the cart at the desk and go get my car first, but there I was traipsing across the street, bumping along as everyone stared. What I didn't realize was that my bag with mail in it was slowly leaking cards and letters and other assorted advertisements all over the street as I walked along. I got to pick cards out of bushes, the center of the street, etc. I was an interesting site. I think I must have sympathy stroke symptoms, considering the more than usual things I have forgotten and spaced this week. I don't even have a dissected artery or percocet to blame!

We will keep you updated on Joe's progress. It sure is a busy place there, lots of fellow patients and nurses and visitors buzzing around everywhere. I think Joe might need some earplugs to sleep! His new roommate is nice; his son is the director (or something like that) at Valor where Todd coaches basketball...he saw us putting Joe's Valor shirt away! It's a small world after all...

Thanks again for all the visits and cards and goodies and dinners and love. We are constantly amazed at the goodness of our friends. Tomorrow we'll post a picture of Joe in his new surroundings!

much love,
rebecca

BIG DAY TODAY; BIG DAY TOMORROW

2008-12-01T21:55:00.003-07:00

This is Rebecca again. Today had a lot going on...a big day for Joe. He's still having quite annoying headaches and weakness, but even so, he will be transferred to the skilled nursing facility, Cherellyn, tomorrow! We got the only bed available on the only day of the week available, and this rehab place (actually a nursing home with a rehab floor, oh well!) is quite close so it will be easy to get over there everyday. It's in Littleton, on Elati, just off Littleton Blvd. four blocks before Broadway (yes he can have visitors!!) We are not sure how long he will need to be at Cherellyn, but hopefully his rehab will go quickly...

Steph and Brandon and Jeff left today after stopping for a nice long visit. Joe had just showered and said it felt great to be all clean (the simple joys of life we take for granted, huh?) and he ate some and even enjoyed these yummy cinnamon rolls that Joan Johnson brought by. (I ate one too, couldn't help it. :) ) Joe's headache is still constant but they hadn't put him back on the decadron (sp?) steroid yet so maybe that's why. He seems to get a little relief and then it comes back again and it worries me. They say this is normal though, so I will be patient (maybe).

Lindsey was so cute today...she went home after we all visited this morning and made cookies for the floor nurses and also the nurses in the CCU...how nice was that??? They all have done a marvelous job. She also made Dad a Stouffer's Lasagna and brought it in hot along with the cookies and an egg nog shake, of course. Great way to commemorate his last full day in the hospital. Thank you Lindsey! THEN, he took a walk down the hall...aided of course by the nurses. (See picture...isn't he cute?) He got so tired and was leaning and having a tough time at the end, so Lindsey had to help him eat his lunch. I think his daughter(s) love to take care of him! Coach Schimpler stopped by today also; and we read him lots of cards from loved ones. Britt and I didn't go back later tonight because he said he was tired...go figure! He talks kind of husky, like Clint Eastwood maybe, from his dry throat brought on by the oxygen. He sounds a little sexy; but it's hard to understand him, oh well!

Again, can't say how much everyone's love and support means to us. I think the prayers are working! Tomorrow they transfer him, probably by ambulance or ambucab, and Lindsey and I are packing his bag with all his "comfy clothes" right now! Wish us luck!

With love like you wouldn't believe,

Rebecca

Sunday

2008-11-30T23:31:00.003-07:00

Today they started Dad on the pirate eye patch! They are switching it a couple times a day but Dad says it helps him concentrate on things, especially on people's faces.

He was able to be taken off of the IV heparin so instead of three IV's he now has only ONE!! This morning I was able to comb his hair a little and make him look "nice" for his visitors. He ate some eggs with cheese... of course, and said they were ok. He said tonight that lasagna sounded good... so maybe that is something we will try tomorrow. But he didn't have much of an appetite today. I think he looks like he is wasting away in the bed. He will just need to eat more ice cream when he feels better to put back on the pounds. I don't think he will mind.

The Wilcox' brought the sacrament to Dad tonight. This was so sweet of them and meant so much to all of us.

Dad said he had a really bad headache today and wasn't able to do much in regards to moving around and such. We think it is because they reduced his steroids dose too soon. The doctors are saying that he will be discharged this week but we don't know exactly what day. He will still need to go to inpatient rehab for a few weeks. We are going to try and work out all the details for that tomorrow. We want him to go to the VERY, VERY best. Thank you for all of your comments and suggestions about different rehab facilities Lindsey is checking up on some places. We will let you all know where he will be going.

Keep praying for our dear dad. He is starting to get really bored.... what are fun things to do in a hospital bed when you feel dizzy, tired, and are in pain? Thanks again for everything you are doing for our family. We cannot begin to tell you how much we appreciate it.

Lindsey

Saturday -- Nov. 29 -- good day!

2008-11-29T20:52:00.004-07:00

Hi everyone, this is Rebecca. Today when I got to the hospital about 11 or so, Joe had just had a real live shower, and was so happy about it! Yet he was also exhausted and his head was pounding. It makes me realize how long all this recovery is really going to take. They gave him some pain killer and within about 45 minutes he was much much better. He had several visitors and they really perked him up...Dave Black, Laura, Bobby, Bradley Antonio and Brittany Harrison, and of course Steph, Brandon and cousin Jeff. It wasn't long until he was cracking jokes and laughing! It made me very happy. The doctor stopped by and said the cat scan showed no change, and that he could most likely be moved to the rehab facility around Tuesday. Oh, and he ate almost an entire cheeseburger! I tell you, it makes me so glad to see him have an appetite. His vision is still blurred a bit, and he is dizzy still, and thinks he is leaning to the right when he tries to stand or walk.

Lindsey went by on her way to work around 5:30 and Doug Hulme was there also. Linds says he was doing alright, still really tired and didn't feel like having any dinner. I now worry that he'll have a bedtime of 7:45 pm for awhile!

I have to say again how very grateful we are for all the prayers, food, cards, gifts, and love. It touches my heart deeply, more than I can say. Of course Joe feels the same way. His family was having their annual after thanksgiving pizza party in Utah and called to be able to wish him well while they were all there.

We have the best friends and family in the world. (P.S. We tried the Greek place across the street, Dave...very yummy.)

And here is a picture of Steph and Brandon with Joe in his new room.

much love forever,
Rebecca

He moved to the 9th floor!

2008-11-28T23:57:00.003-07:00

Today they moved Dad to the Neurology floor (9th) of the hospital. He is happy because they took out the IV's in his left arm... but he still has the ones in his right. He did some occupational therapy today which he said completely wore him out. He was exhausted all day. Just like yesterday, he said he started off feeling better, but then his head started to hurt really bad again. We got him to eat a full plate of macaroni and cheese though. This is the largest amount of food he has consumed in one sitting, even though it took him an hour and a half to eat it all. We got him another eggnog shake today, which he enjoyed.

He complains that his neighbors are loud and he can't sleep, ha ha. We all know he is a light sleeper! He has color in his face today again, but he says his face is still numb. We decorated his room to feel more "homey" which we hope will lift his spirits.

He wants me to tell you all how much he loves you and how much he appreciates each and every one of you visiting, emailing and calling. He feels bad for worrying everyone, but appreciates the kindness everyone has shown. This is a trialing time for him and he needs you all there for him.

I would also personally like to thank you all for supporting him and praying for him. I have always been amazed by the connections my parents have made and the kind hearts of the Littleton community as well as our whole family. He is a very lucky man. And I know that he can get through this. He is the strongest, most faithful man I know. He is truly my hero. And I am so proud to call him my Dad.

Love Steph

Thanksgiving

2008-11-27T21:41:00.002-07:00

Today we helped Dad sit up and eat by himself. He certainly struggled, and we had to help him some, and he put up a fight while doing this, but he had nurses and 3 daughters who continuously encouraged him and told him it would really help him. We are so proud of him. They switched his pain medication and we hope it will help his pain. We got him an eggnog shake, which is his favorite thing. He had a big smile when he first tasted it and said it tasted so good! We then left and went home to eat a big meal with the 9 of us here. Our Grandma made the most amazing meal ever and we are so thankful she was here and willing to cook for practically 24 hours straight for us. She made about 10 pies!

We then went back to the hospital and brought Dad some mashed potatoes, one of my Mom's homemade rolls (which she only makes once a year at Thanksgiving), some more of the eggnog shake, banana cream pie, and lemon meringue pie. He loved it all. He just says it really hurts to sit up and to swallow. He kept apologizing for ruining our Thanksgiving, which was very sad. We keep telling him he has nothing to be sorry for.

Note from Rebecca November 27, Thanksgiving Day

2008-11-27T12:56:00.002-07:00

I want to sincerely thank everyone for your sweetest kindest well wishes and prayers. It is what gets us all through and we have the best friends and family anyone can ever ask for. You have stayed beside us for five and nearly six years through the toughest tragedy there is to bear. We will get through this and Joe will get better. It appears it will take awhile and I have been clueless how much it entails but I am learning day by day.

Today the nurse told us that Joe can't have any more than one person in the room, and we should limit visitors. They were planning on moving him from CCU but he has taken some down turns during the past 24 hours and isn't ready. They want him to just have complete silence and no stress on his brain to even have to think until he can get out of the CCU and on to a "regular" room. THEN, visitors will be more than welcome to stimulate his brain to regain it's strength. It is so hard for Joe, or me, to have to admit this. But hopefully it will just be for another day or two and he can get on to the next stage of recovery!

We love you all so sosososososo much!
Rebecca

Wednesday Update

2008-11-27T00:28:00.003-07:00

Today was up, then it went down. The Day started off with Dad saying he felt better. He explained how the last three days he has felt like a 0 and changed to a .5. A small progression, but still a difference.

He gained color in his face and he is able to open up his eyes more, but can only focus on one spot or else he "swims." I fed him some more food. He actually ate a fair amount and said it tasted really good.

He had 3 therapy sessions today which completely wore him out. He sat all the way up in the bed with his feet touching the ground, but this killed his head and made him feel sick. He also had a writing test, where he had to write his name, and sign his name, and then draw a clock. These things did not look that great and it made us all laugh.

We went and looked at 3 of the possible rehab facilities that my Dad can go to and they are pretty much nursing homes with the average age of 90 or so. This was really discouraging. We know that this would make Dad feel really sad. We are still trying to talk to the insurance liaison to see if there are any other options. Let us know if you have any suggestions or options we can follow up on.

So the nurse told us that they were going to move him from Critical Care tomorrow morning to the 9th floor of the hospital in the Neurological Center. But plans have changed.

Tonight my Dad was talking to Ray Goodwin and all of a sudden started saying something was wrong. He then started dripping sweat, felt really dizzy and extremely nauseated. The nurse calmed him down, cooled down his body and gave him more pain medication and nausea medication. She said it is nothing of big concern but it really scared us. Dad said it was just as bad as Saturday night. When we left tonight, he was sleeping but said he felt so awful.

We hope he will feel better in the morning and make more progress. We feel as though some progress had been made earlier in the day but now we are back at the beginning. Keep praying for him he needs those extra thoughts and prayers right now.

We hope you all have a happy Thanksgiving with all of your loved ones. We are so thankful that our dad is alive and stable. We pass by so many other patients in the critical care unit who are on breathing machines and in comas. We are so grateful for our wonderful father. He is so strong and brave and loved so very, very much. Over the last couple days I have been constantly reminded of the wonderful man he is and what a blessing he is in ALL of our lives.

Lindsey and Stephanie

Tuesday Night Update

2008-11-25T21:57:00.003-07:00

We just left the hospital for the night to come back home to eat and catch some rest. Dad had many more visitors today. Here are some main points:

1. Dad has had many visitors stop by to see him. This means so much to him. He just cries every time he thinks about the time people have taken out of their holiday and busy schedules to visit him. However it really wears him out if the visits are too long, so the doctors have asked us to limit all visits to 5 minutes or less. They also have rules that only 2 people can be in the room at a time, and no visitors are allowed between 2:30 and 4:30 everyday. Rules are rules we hear.

2. Today Roy Jones and Grant Larsen stopped by and I asked them to give Dad another blessing. Like I said in the last post, he complained today that the pain was worse than before. So we thought that he needed another blessing. I knew my Dad would never ask for one, since he would never want to ask for help or inconvenience anyone either. But I walked in after and he just cried saying how thankful he was for the blessing and the second they laid their hands on his head and started the blessing, he felt peace and calmness. The power of the Lord is evident in my Dad's life. We are so blessed to have the gift of the priesthood during this time. Grant also brought him some books on tape for my Dad to listen to on his ipod and his music player. When we left tonight he asked for us to turn it on for him.

3. We got him to eat something tonight! This is so exciting! All day he said everything sounded so gross to him and he didn't even want to drink since it hurt so bad to swallow. Well as some know, my Dad LOVES mashed potatoes, especially fake ones since that is what he grew up on. And he also loves meatloaf. So that is what they brought him for dinner. So he told us that this sounded good. So he ate and swallowed the meatloaf and mashed potatoes and gravy very well. He washed it down with some orange juice. We then brushed his teeth. We sat him up to almost 90 degrees. He said this hurt his head really really bad, but he did well.

4. He is getting another cat scan at 6:30 AM and will be done around 8:30 AM or so. This will show if he has made any progress. We will let you know the results. They want to keep him in Critical Care for at least until Thursday. Then if he makes progress, he will be moved to a regular room in the hospital for another 3 days or so.

5. We have been blessed by so many friends, neighbors and loved ones, who have stopped by to bring us food. This means so much to us. We just had a dinner of completely prepared food. Thank you so much.

Thanks again for checking up on our sweet father.

Love Steph and Linds

Pictures and updates

2008-11-25T12:39:00.009-07:00

Several of you have asked me to post some pictures. Here is a picture of his MRI. I took a picture of the computer screen, so sorry it's not the best. And the picture is flipped. So the left side in this picture is actually the right side of his brain. You can click on the picture to make it bigger.

The bright part of this picture is the cerebellum. The brighter white part on the left part of this picture is actually DEAD and not functioning. The little circle above the cerebellum is the brain stem and a small part of that is also white, which means it is DEAD. There is not a large portion of the brain stem damaged, but still a significant amount for its size.

This next picture is of his room and my Mom talking to him next to his bed.

So I got here yesterday, with my Mom's parents. We drove in and arrived around 6:30 at night. I got here and he had so many visitors here for him. He is really loved. My Mom is completely overwhelmed and she describes herself as if she is in a "fog" and doesn't comprehend what is going on. Within 30 minutes, she had 10 missed calls. I have tried to take over for her. So please call my phone and I will try to answer. 303-903-2105. She has been updating visitors, taking them back to his room, guiding people around.. so she is very busy.

There is no change with my Dad. They sat him up this morning and he got so sick from the change in levels. He complains that his mouth is very dry, since he is talking so much. He took 3 sips of apple juice and then had to stop because he felt so nauseated. He says nothing sounds good to him. So he doesn't want to eat. They gave him anti-nausea medicine but he says he feels worse with it. He won't even move his head because he says it hurts so bad.

The doctors have told us it would take 3 days for him to start to feel any better, and today is the third so we have high hopes.

He has asked me about 4 times to read all the emails from everyone to him, but right now he is just so tired he can't even get a full sentence out. But please keep writing. I have all the comments from the blog and emails and text messages saved to read to him in a few minutes.

I wanted to add a note for everyone to KEEP praying. THE PRAYERS ARE WORKING. As some of you know, my Dad found out about a month ago he would be laid off at the end of December. Well his boss, Scott, (what an amazing man.. he is here now visiting my Dad again. He is so thoughtful and caring.) came to tell us yesterday that they are going to extend his employment until March and give him severance pay for 3 months after that. What a blessing! I hope that will take some of the stress off of his shoulders. He has been so worried about his job. I am afraid that might have something to do with this condition.

Thanks again everyone. We love you.
Love Steph

"Brain Attack"

2008-11-25T00:10:00.006-07:00

We had the idea of creating this blog as a way to update and inform all of our family and friends on Joe's progress. First of all, we want to thank all of you for all of your love and support. We hope that you all know how much you mean to us and how much your love and support has helped us over the last 5 1/2 years. We have received so many sweet visits, emails, phone calls, and texts over the last couple of days. Thank you so much for your constant prayers, fasting, and support. We love you all so very very much.

On Saturday night, November 22nd, Joe and Rebecca went to Chatfield High School's talent show to watch Brittney perform. She did great, of course, so the three of them went to Dairy Queen after the show. Later that night Joe was bending over to place his shoes in their designated spot when he started to feel very dizzy, nauseated, and sweaty. As he tried to stand up, an intense pain began in his head behind his right eye and everything was "pulling to the right". Rebecca was immediately at his side, knew something was wrong and called the paramedics. Ten minutes later Joe was carried down the stairs and was rolled on a stretcher to the ambulance.
At the hospital many tests were performed. At first everything seemed alright until the on-call neurologist came and looked at the CAT scan. It seemed as though a blood vessel supplying oxygen to Joe's brain had been torn and oxygen was unable to get to the cerebellum and a small portion of his brainstem causing the brain tissue to die. A stroke, otherwise known as a "brain attack" occurred in this part of his brain. The cerebellum is involved in the coordination of voluntary motor movement, balance and equilibrium and muscle tone. The official diagnosis is vertebral artery dissection, which is a tear in the lining of the arterial wall. The tear can begin to heal and a scab (clots) form along the tear which can cause a blockage in the artery. Or blood can build up inside the lining of the artery and cause too much weight or pressure which may also block the artery. The doctors are unsure what caused the tear in the first place. Trauma or chiropractic work are the two most common causes of vertebral artery dissection but, Joe has had neither of these and he doesn't have other risk factors for a stroke. The damaged or dead portion of his brain is permanent but the doctors make it seem that the brain will begin to compensate for the dead area and a full recovery can be expected. As the doctor explained it to us, " he had a large stroke to a small part of his brain."
The doctors say that the next three are the most critical. He will be kept in the critical care unit at Swedish so that he can be monitored closely. Damaging concerns at this point are bleeding into the brain, swelling, and accumulating extra fluid between the brain and the skull. These things peak within 72 hours but usually would occur in the first 5 days. He has many IV's.... including one that goes directly to his heart. He is on heparin, a medicine that thins his blood so other clots are not forming and spreading to his brain or lungs. He is pale, tired, and has a very terrible headache. The doctor and nurses assure us that these are all "normal" signs after this specific area of the brain is damaged. He is alert, awake, and able to talk well. He even throws around a few jokes now and again. He is able to move all four extremities, but the right side of his body is weak. The right side of his face feels "numb and tingly like after visiting the dentist". It is very hard for him to move around in bed because of the horrible headache but he is making little efforts to please us and the hospital staff. The pain is also making it hard for him to sit up or stand. So in a couple of days occupational and physical therapy will evaluate him and his deficits that he has. The doctors have explained the importance of quick and aggressive rehab and recommended that he stay as an inpatient on their rehab floor once he is medically stable. This way he will be able to do many more hours of therapy a day. The doctors say that he may need to stay in the hospital for a few weeks but at this point it is hard to really give any type of timeline.
Brother Hulme and Brother Persson came to the hospital on Sunday and gave him a blessing. They blessed him with strength and health. They blessed the doctors who were caring for him. They blessed our family and friends with strength, understanding, and faith. It was a really great blessing. Many other visitors have come to see him. It is hard for him to keep his eyes open because he starts to "spin" but we know he appreciates the thoughtfulness.
Again, we are so blessed to have such wonderful friends and family. We will never be able to tell you just how much you all mean to us. We don't know what we would do without your support, prayers, love, and faith. We love you all.

The Ellsworth Family (Lindsey)